Story #2 - Hiding

The second story in our series from author Jayne M. Rose-Vallee's sister, who was diagnosed with Alopecia Areata at the tender age of 13.

DLIMH donates a portion of proceeds to the NAAF.


~ I remember thinking, “Oh no, another bald spot.” Some mornings I would wake to discover another bare patch I would have to cover. It was getting harder and harder to conceal these patches. To say learning to deal with Alopecia was difficult is an understatement. At fourteen the bare spots began multiplying. It was at this time, I learned the valuable art and joy of HEADBANDS and BANDANAS!

The ROLLED BANDANA tied on top of my head covered bald spots on side of my head while it created a rabbit ear look. This was often my “go to” look. SWEATBANDS helped to hide the receding hairline. I call this my Jane Fonda look. Keeping my hair short and the use of different shapes, sizes, and colors of headbands, helped me tremendously through this phase. I quickly became an expert. The trick was to get the hair in the right location with the headband and then use a can of hairspray to lock everything in place.                                                

There was no wind storm that could beat a good can of Aqua Net Extra Super Hold hairspray. I even mastered the female version of the “comb over” which I held down with a headband.

When I finally had to relent and switch over to a wig, I continued to wear my headbands. They had become part of "my look" and everyone knew me by my headbands. Yellow ones, blue ones, every color of the rainbow, were stuffed in a drawer ready for me to pull out. I even learned how to dress them up. In many ways they became my security blanket. I thought they made me pretty. Trying to fit in with my fellow classmates, not showing anyone my “defect” was a challenging secret to keep. I would say HEADBANDS and BANDANAS were a lifeline in my journey.